0

Balloons and Updates!

Hello! Well it’s been over a month. I’m hoping NOT to make a habit of this but like I stated in my last blog post, college comes first. Thankfully, college finished tomorrow for Christmas break however, it doesn’t stop the amount of revision I have to do or the coursework I have to complete -.-

But I did promise myself to work on this project, however little or big it may be during the holidays. So here I am. From the last post till now, everything has been hectic. From college, to my brothers school. Well firstly, he turned 5 in November so YIPPEYY! He’s a year older. But because he’s a year older, it means we need to focus on his speech therapy even more. I know that in his new school, he’s going to have speech therapy every Thursday but I currently feel lost. As do my family.

And because we feel lost, we need to get updates. But it’s really hard because you really want to ask them but you don’t want to feel like your pestering them. I understood the work of a speech and language therapist but it wasn’t till I brought this book just how much work was involved:

http://www.google.co.uk/products/catalog?q=speech+and+language+therapy+book&hl=en&bav=on.2,or.r_gc.r_pw.r_qf.&bvm=bv.1355534169,d.d2k&bpcl=40096503&biw=1366&bih=667&um=1&ie=UTF-8&cid=6630321643989473167&sa=X&ei=EHnTUJbhDfKr0AWq0YCAAw&ved=0CE0Q8gIwAA

This book has become my guide, something I carry with me every where I go and to those who are aspiring to be a speech and language therapist- this book is a must have! Patience is key however it doesn’t hurt asking!

 

 

Ok so balloon’s have become my brothers latest obsession. Wait, it’s always been but we only have them around for birthdays and it was my birthday like two weeks ago so our house was filled with balloons. But never fear, my brother somehow managed to pop all 18 balloons. It’s scary when he lays his head onto the balloon when it’s on the floor so I tend to scream whenever my gut feeling says it’s going to blow. Jeehz I’m such a girl.

In other news, going to be working on the logo for the project. I feel that once I do this, I can maybe get things done slowly and get somewhere xD Oh and I have 3 offers, and 1 rejection Q~Q My heart hurts from the rejection but it’s ok… I wasn’t going to go there anyway ¬____¬ BUT I AM STILL WAITING FROM CITY! I hope I get an interview Q~Q

0

It’s been a month and two days.

Not being specific or anything or highlighting my lack of getting things done.

In all honesty, did not ditch the blog! I was really busy with college and UCAS so I guess college commitments come first before this. So I thought, it’s been too long since I’ve posted in this blog so I’m sure taking a bit of time off of my college commitments won’t hurt 🙂

Other than me being busy with college, we’ve noticed that my brothers been starting to babble a bit more and exploring a wide range of uh.. consonants- kind of. Either way, he’s been verbal and that’s what counts xD He went to have his check up for this year at the center that first diagnosed him. So, when I came back from college, my mum had some good news. They had said that everything from his brain to his toes were perfectly fine. That he had improved. His mental age in a way to put it is now three which is great because it shows that he improved! Also, my mum asked him where he was on the scale- something that no one ever told us.

So the lady explained to my mum that my brother is able to do a lot of things but it’s just that he’ll only do what he wants to do a.k.a stubborn. But I guess it’s not stubborness? He just doesn’t want to do it, but he can do it. Which I guess upon hearing it made my mums day because she’s always noted that he was stubborn for his age, and the fact that he is able to do things gave her hope because he can do it and now she understands that we’ll just have to keep at it so he’ll do it eventually, slowly but surely.

Oh and a few posts ago, probably one of the first few posts, I wrote about one of my brothers medicine which stank like sh-. Well, we finally found a way for him to have it 😀 So my brother likes to drink his mango juice so we decided to mix a little in there. (Its a syrup and we checked with the doctor and it’s perfectly fine!) AND HALLELUJAH HE DRINKS IT C: They’re going to send him to a blood test to check his vitamin levels and all that jazz.

So things are looking a lot more positive c: I’ve learned that he’s going to meet with the speech and language therapist every thursday and I guess I’m really eager about how things go that I keep harping the school to update us about it (I’M SORRY, I CAN’T HELP IT Q~Q) But yeah, he’s going to go through an assessment and then they’re going to do things around that. I’d love to be there when they do it! But I don’t think I’ll be able to D: I recently brought a book about SaLT and how they do their work, and I’m honestly looking for some free time to read it. I just find the job of a speech therapist really awesome and the fact that you get to use your creativity in it too, I mean I have a few ideas ^^ But I hope I can do it. If I put my mind to it, I can.

I think the key thing to anything is to perseveare but DON’T OVER DO IT! Because soon the enjoyment just gets sucked out. *nod head*

Well I’m going to end it here since I have coursework to do and hopefully, I’ll post another blog up soon. Oh, it’s my brothers birthday soon! November the 13th! I’m going to attempt to make a double decker cake 😀 not that he’ll have any but yeah! 😀

0

Kids ask the most awkward things.

During the weekend, my family and I visited our cousins in Wales since we haven’t been there in AGES. Note that they are my first cousins (mums side of the family) and my cousins are all married so their kids are like.. my nieces and nephews I guess o.o But yeah, they’re aged between 5-10 and when it came to my brother, boy did they have a lot of questions to ask.

“Why doesn’t he talk?”

“Why isn’t he listening to me?”

“Can he hear me?”

I don’t get asked these questions by people my own age or older because they generally have an idea of what autism is. But when your young and all innocent, you just can’t help but ask the obvious question. Answering simply doesn’t always solve this case because they’ll always ask ‘why’ afterwards. And I have no idea how to respond to those questions that would make sense to them. I am in no way saying that I am ashamed to talk about my brothers autism, but I have no idea how to speak to younger kids about it. How would you explain Autism to young children?

I’ve contemplated many ways to say this such as:

“My brother can hear you, he doesn’t talk because he doesn’t know how to yet but he will later”

But then I think, what if ‘later’ I meet them again and they ask why he doesn’t talk yet. Is it then when I say that ‘He doesn’t like to talk?’ Or do I explain that he has Autism? I feel the need to nail these answers so I’m prepared the next time I get asked. Its hard because you want them to understand but at the end of the day, their just kids and maybe it’s best to just give the most plainest, and the most simple answer.

*sorry for not posting, been busy with A Levels! It will most likely get really hectic from here on but I will try my best to post when I can 🙂

0

DIG A HOLE!

Is currently my baby brothers favourite game.

Requirements:

-A bed with a duvet.

-Yourself.

-And Skills.

So we have my older brothers old bed downstairs in one of the spare rooms because we plan on throwing it out (not sure out to exactly o.o) My brother would just suddenly disappear and the first place we’d look is the spare room. I remember once when I went into the spare room to look for my brother the first thing I noticed was something moving under the duvets at quite a fast pace. Before I knew it, my brother popped his head out the end of the duvet giggling with joy! It was really cute! 🙂 And it also reminded me of a game me and my older brother used to play when we were really young and it was called ‘Dig a Hole’. Funnily enough, it was exactly the same game as my baby brother just discovered.

You guys should try it. It’s a really fun game and a great way to kill time! (Though it’s more fun when your below the age of 6 and way below 5ft.

 

In other news, my brothers starting school soon! He’s going to be starting a new school and going to be there for like 7 hours! We’re all nervous. Just the normal ‘is he going to settle in?’ is clouding over our minds. Also thoughts like ‘is he willing to try new foods?’, ‘will his communication improve?’, ‘will the staff be cooperative and supportive just like the staff at his nursery?’

2 members of staff came to our house today to just speak to us about the basics of starting school and stuff. They talked us through a lot of things and they seemed really lovely c: Some of the things we discussed were putting my brother on school dinners. This is so that my brother could try and experience different types of foods. But being the picky eater that he is, we are packing weetabix in his bag. If this fails then he’s probably going to have to come home for lunch.

For me, I guess one of the concerns I have is whether he’ll be able to settle in with his new school just like he settled in his nursery. I’m hoping he does because once he does settle in, he just really enjoys actually going to school and then coming back 🙂 Bit I guess we’ll just have to wait and see.

0

On a positive note.

(Just want to say, sorry that I haven’t put up a post- I’ve just been really busy! This is going to be a quick post as I really need to work on my Extended Project)

A thing that my little brother does now is that whenever you raise your voice, he’ll actually shout back but he’ll say ‘GEEEEE!’, whatever ‘GEEEE’ is. I actually find it pretty funny :’) and kind of cute. But I guess its nice to know that he does realise when we raise our voice. I guess him answering back is his way of standing up for himself?

He also (with my help^^) can go down the slide by himself! And I’m not sure whether he understands what ‘sit’ is but usually, when he climbs the slide, he’ll stand on top of it and look up at the sky and all around, but when I say ‘sit’, its at that point that he actually does sit down. At first I thought it was a fluke but after following through over and over again, I’m convinced that he understands.

I feel that throughout the whole summer, my brothers been improving little by little. We’ve found that he’s able to climb the slide, he answers back when you raise your voice- he’s even started to babble a lot more! Things like this get me really emotional at the fact that he IS improving. I really want to write a whole lot but words fail me. Just that I’m really happy at the way things are going 🙂

Also, I feel that this article is total bull, be aware: http://www.autismhowto.com/vaccines-and-autism-know-well-before-making-any-move-about-the-disorder-and-its-vaccination.html

 

2

Autism v Autistic+ NEWS!

Yes, my brother has autism and yes I know the term to refer someone who autism is ‘autistic’. But I just see the term ‘Autistic’ as a form of labelling. Yes, I’ve come to terms with my brother having autism months after he was diagnosed but my point is, I don’t like it when he’s being referred to as ‘autistic’ because it gives the idea that he has to act a certain way because he can’t do certain things and I don’t like that. Each and every individual with or without autism is different. I’ve opened my eyes to the idea (after reading Ellen Notbohms book) that my brother is able to do anything and everything. I can’t NOT expect him to do it because he has autism. No. I have to at least try. If I give off the vibe that I don’t think he can do it, he WILL pick it up and he’ll think ‘why try I can’t do it?’. And he won’t do it.

I can recall an experience that was very.. hard and upsetting for me. I remember we were at this clinic and we were just with the paedetrician and her trainee. The paed (too long to write D:) wanted my brother to give the ball to me. The trainee suddenly interjects and says ‘But he’s autistic,’ This happened during the early months when he was diagnosed with autism. And it was really hard because she (AND SHES A TRAINEE, HOW DOES THAT WORK?!) expected him not to do it and it was hard for me because it made me think perhaps he can’t do it? But I tried to not let it get to me. AND YES HE CAN PASS THINGS TO ME WHEN HE WANTS OK? He can also do when you want him to- IF YOU HAVE THE PATIENCE!

You have to believe that your sibling will do it. Because then at a slow or steady or whatever pace that suits them, they will try. And if they try and they don’t succeed. They could always try again. But if they try and they DO succeed, then it will be the best feeling in the world. Though as Ellen Notbohm states, there’s a difference between can’t and won’t. Sure if you have that vibe of your sibling not being able to do it, then don’t expect them to do it because they’ll have the idea that they can’t do it. But if in a situation your sibling won’t do a certain thing, please don’t believe its because they CAN’T do it. It’s probably because a) they don’t know how but b) they just won’t do it- but that doesn’t mean they can’t, so keep pushing.

Yesterday, my older brother referred to my younger brother as autistic. I can’t parade around forcing people to refer to my brother as a child with autism because at the end of the day, they may not think or see things the same way I do. Sure it hurt that he referred to him as ‘autistic’ but after I explained to my brother, he kind of got it. It’s important for my family to not refer my brother as an autistic child but as a child with autism considering  we all live under one roof 🙂

So going a bit off the main topic, is this true? :O

http://www.dailymail.co.uk/health/article-2182550/Autism-A-pet-helps-children-autism-develop-social-skills.html

I may just look into this a bit more 🙂

Now for some news. I’m setting up a project called ‘Autism and The Teen Sibling’ which you can find more about here:

http://www.junction49.co.uk/idea/3102/autism_and_the_teen_sibling/

And follow here:

https://twitter.com/AutismAndTheSib

The initial idea was for teens with a sibling that have autism to share their experiences and offer support and such but after posting on tumblr, I’ve decided that this is also a place for teens with autism who will also be able to share their experiences and perhaps offer support. Theres not support group that I’ve come across that offers support to both and I think thats the uniqe thing. Its really important for us to educate ourselves about autism but at the end of the day, we need to keep in mind that each and every individual is different and I think being able to read about experiences from both sides will gives us an indepth account of life with autism and how it can affect people in different ways 🙂

I’m not a saint and I don’t believe I can create a miracle but if I can create a place where people can be more understanding about autism and its affects then why not? It goes back to the whole being about not being able to do it. I won’t know unless I try. And if I can just open the eyes of just one person then  its worth it. If I don’t, then I will continue to write in this blog and just enjoy life with my brother 🙂

Also on another note, I know some people with autism would want to be referred as being autistic and others differently. Just because I refer to my brother as someone with autism doesn’t mean I will call someone similar to my brother that. If that person wants me to refer to them as autistic, then I will. It’s just the matter of opinions and how people view things differently. I can see the difference when people refer to someone as being ‘autistic’ and referring to someone with autism. Theres negatives on both sides. I guess by saying that A has autism does sound like they have a disease but for me, its the same as saying A also has a flu. We don’t runaway when we say A has a flu because we know what a flu is. But when we say A has autism, I won’t run away because I know what autism is. But those who don’t understand or know what it is will. But a person with autism may or may not see that differently. Who knows. And maybe this project will be able to give teens a bit more knowledge on what autism is. But I think till people study upon the basics of what autism is, then the stigma from both will just disappear. When the day comes and my brother asks me to refer to him as autistic, then I will refer to him as autistic.

But wouldn’t life be easier to just refer to each other as an individual minus the labels?

0

Babble away you 4 year old gymnast!

So yesterday I noticed that my brother was babbling A-LOT. And when I mean a lot, I mean constant ‘blahblahblah-blah-blahblahblah’. So I decided to have a conversation with him. I was afraid that if I were to use actual words to interact with him, he may stop babbling. I had the imitation theory in mind so I thought I’d just copy him, as if he’s teaching me to talk/babble. Even though I had NO IDEA what was being said, he continued to babble. And when I stopped babbling, he’d start off again. And so on.

I think its really great because it gives him a chance to in a way, interact and get him to exercise his muscles? o.o I dunno what would have happened if I had spoken to him with actual words so I’m thinking when he does babble again, I’ll use words and see what happens. Oh and really simple sentences like, ‘What are you doing?’

Another thing I realised that he does a lot are hand stands and roli-polies. The handstands that he does, he’ll basically put his head on the sofa and do a handstand whilst leaning against the sofa. And I think he knows that he shouldn’t be doing it because when you call his name or approach him, he’ll stop doing it and times he’ll roll out into a roli poli making you go all ‘Woah!’. I don’t know where he learnt it all from but it’s very entertaining 😀 I know for a fact that I couldn’t do a handstand till I was like 12 o.o But it is nice to see him be a kid. I think people need to realise that just because he has Autism, it doesn’t make him different from any other child. Yes, he CAN have fun just like any other child.

It’s honestly the best feeling in the world when I see him prove my point of kids with autism being able to act like any other kid :’)