2

Here’s the sitch.

(Note the Kim Possible reference. No? Ok then, moving on…)

So I’m in two minds. Well not really, I just thought I’d write that down so I know where to start or at least have something written down. Hahaha, I feel like a nervous wreck! Moving on.

‘Autism and the Teen Sibling’ started off as a blog (as you can clearly see), but then it formed into an idea for a project which you can read about here:ย http://www.junction49.co.uk/idea/3102/autism_and_the_teen_sibling/

I officially posted this idea on Junction49 on the 5th of August last year and since then, I’ve been doing a few bits and bobs- running this blog, Facebook page and Twitter page as well as logo and other such. And that’s all I’ve been doing. I’ve been trying to get word out and get people involved, perhaps post a blog entry and there have been people who’ve been interested but haven’t replied back. I feel like it’s time I started doing something for this project that may spark interest or ideally, I just want to give it that big push!

I feel like this project could benefit a lot of young people, siblings with autism or not: to create a community where they won’t feel alienated or lost and perhaps learn from each other. Please don’t laugh at me but I had a dream that this expanded and perhaps we could have like a ‘club’ set up in a few towns and people can come in and we’d socialise and do things together. It’s a pretty cool idea but right now, its too far away.

Other ideas included: wristbands, a book for teens by teens, website, a video, a medium educating young people about Autism perhaps aimed at siblings or teenagers, create a platform where if they need someone to talk to, we’re here.

I feel the need to apply for funding but I obviously can’t do that as I don’t have a solid idea as to what I want to do!

GAH SOOO MANY THINGS! But, I really do want to do something and for now, I may just play around with a few ideas until I get A Levels out of the way. But I would appreciate any ideas or comments that you guys may have. Here’s a thought, why not check out our Facebook page? ๐Ÿ˜€

https://www.facebook.com/AutismAndTheTeenSibling

 

But looks like I have a lot of planning to do!

2

Autism v Autistic+ NEWS!

Yes, my brother has autism and yes I know the term to refer someone who autism is ‘autistic’. But I just see the term ‘Autistic’ as a form of labelling. Yes, I’ve come to terms with my brother having autism months after he was diagnosed but my point is, I don’t like it when he’s being referred to as ‘autistic’ because it gives the idea that he has to act a certain way because he can’t do certain things and I don’t like that. Each and every individual with or without autism is different. I’ve opened my eyes to the idea (after reading Ellen Notbohms book) that my brother is able to do anything and everything. I can’t NOT expect him to do it because he has autism. No. I have to at least try. If I give off the vibe that I don’t think he can do it, he WILL pick it up and he’ll think ‘why try I can’t do it?’. And he won’t do it.

I can recall an experience that was very.. hard and upsetting for me. I remember we were at this clinic and we were just with the paedetrician and her trainee. The paed (too long to write D:) wanted my brother to give the ball to me. The trainee suddenly interjects and says ‘But he’s autistic,’ This happened during the early months when he was diagnosed with autism. And it was really hard because she (AND SHES A TRAINEE, HOW DOES THAT WORK?!) expected him not to do it and it was hard for me because it made me think perhaps he can’t do it? But I tried to not let it get to me. AND YES HE CAN PASS THINGS TO ME WHEN HE WANTS OK? He can also do when you want him to- IF YOU HAVE THE PATIENCE!

You have to believe that your sibling will do it. Because then at a slow or steady or whatever pace that suits them, they will try. And if they try and they don’t succeed. They could always try again. But if they try and they DO succeed, then it will be the best feeling in the world. Though as Ellen Notbohm states, there’s a difference between can’t and won’t. Sure if you have that vibe of your sibling not being able to do it, then don’t expect them to do it because they’ll have the idea that they can’t do it. But if in a situation your sibling won’t do a certain thing, please don’t believe its because they CAN’T do it. It’s probably because a) they don’t know how but b) they just won’t do it- but that doesn’t mean they can’t, so keep pushing.

Yesterday, my older brother referred to my younger brother as autistic. I can’t parade around forcing people to refer to my brother as a child with autism because at the end of the day, they may not think or see things the same way I do. Sure it hurt that he referred to him as ‘autistic’ but after I explained to my brother, he kind of got it. It’s important for my family to not refer my brother as an autistic child but as a child with autism considering ย we all live under one roof ๐Ÿ™‚

So going a bit off the main topic, is this true? :O

http://www.dailymail.co.uk/health/article-2182550/Autism-A-pet-helps-children-autism-develop-social-skills.html

I may just look into this a bit more ๐Ÿ™‚

Now for some news. I’m setting up a project called ‘Autism and The Teen Sibling’ which you can find more about here:

http://www.junction49.co.uk/idea/3102/autism_and_the_teen_sibling/

And follow here:

https://twitter.com/AutismAndTheSib

The initial idea was for teens with a sibling that have autism to share their experiences and offer support and such but after posting on tumblr, I’ve decided that this is also a place for teens with autism who will also be able to share their experiences and perhaps offer support. Theres not support group that I’ve come across that offers support to both and I think thats the uniqe thing. Its really important for us to educate ourselves about autism but at the end of the day, we need to keep in mind that each and every individual is different and I think being able to read about experiences from both sides will gives us an indepth account of life with autism and how it can affect people in different ways ๐Ÿ™‚

I’m not a saint and I don’t believe I can create a miracle but if I can create a place where people can be more understanding about autism and its affects then why not? It goes back to the whole being about not being able to do it. I won’t know unless I try. And if I can just open the eyes of just one person then ย its worth it. If I don’t, then I will continue to write in this blog and just enjoy life with my brother ๐Ÿ™‚

Also on another note, I know some people with autism would want to be referred as being autistic and others differently. Just because I refer to my brother as someone with autism doesn’t mean I will call someone similar to my brother that. If that person wants me to refer to them as autistic, then I will. It’s just the matter of opinions and how people view things differently. I can see the difference when people refer to someone as being ‘autistic’ and referring to someone with autism. Theres negatives on both sides. I guess by saying that A has autism does sound like they have a disease but for me, its the same as saying A also has a flu. We don’t runaway when we say A has a flu because we know what a flu is. But when we say A has autism, I won’t run away because I know what autism is. But those who don’t understand or know what it is will. But a person with autism may or may not see that differently. Who knows. And maybe this project will be able to give teens a bit more knowledge on what autism is. But I think till people study upon the basics of what autism is, then the stigma from both will just disappear. When the day comes and my brother asks me to refer to him as autistic, then I will refer to him as autistic.

But wouldn’t life be easier to just refer to each other as an individual minus the labels?