0

the not so picky eater.

One of the biggest improvements has to be my brother’s diet. I mean, yes he’s still picky but he’s a bit more open to a few more things like:

  • Bread and biscuits dipped in tea (HAS to be dipped in tea or milk so it softens- biscuits vary)
  • Chips
  • He’ll have anything meaty as long as it’s not chewy and has zero spices because he can’t take the heat!
  • Crisps of all sorts minus strong flavours like prawn and cocktail, salt and vinegar bbq etc: he’ll basically have cheese and onion and ready salted
  • Cheese and onion pasty

…. and a few more things but that’s all I can think of from the top of my head.

But looking at this short list beings a huge smile to my face because compared to before, where he’d only have things like boiled rice or weetabix, both with the same consistency and texture, he’s much more open to other textures and tastes and it’s a massive step for him. I think it comes down to trying. Even when  you know they won’t taste it, it’s better to try. And I think that’s what’s worked.

2

Boy Vs Dinner and the power of ‘NO’

I’d thought I’d update seeing as though it’s been nearly over two months. And boy did a lot happen in two months. They’d have to be one of the most challenging two months of my life what with the loss of my aunt whilst trying to keep on top of revision, coursework and exams. Oh and not to mention sorting out my brother’s speech therapy referral. I have to say, I’m pretty disappointed with them but that’s a completely different matter.

Challenging is the best word to describe these past two months. The only motivation that I have is the fact that it’ll all finish in three weeks. From June 5th, I’ll be free of any form of college works whatsoever. And then the anxious wait for my A Level grades will begin! Other than that, I really haven’t been up to much.

In actual fact, I should be revising now but I thought I’d take the time and blog something and here I am! Firstly, you’ll notice that I’ve changed the layout. I was pretty bored of the old one and wanted something that was new, free and well awesome. And I’ve found it! BWAHAHA! My brother on the other hand, has been up to a lot. Kind of.

Well, we’ve learnt that he’s an awesome swimmer as told by one of the teachers in his school. He still uses armbands but apparently, he’s taught himself how to float on his back which is really really really great. And with one of those long floaty things. You know, the ones that look like a sausage? He’s also becoming quite the artist. He doesn’t really do much hands on arts and craft but he did a really cute hand printed picture and I really love it! I love all the colours and the uh.. movement of the strokes? It’s currently hanging on the back of my bedroom door and I practically smile every day just looking at it. Though suffice to say, he hasn’t really painted anything since.

You can see his artwork by clicking on the link 🙂 :

https://twitter.com/AutismAndTheSib/status/334701467871084545/photo/1

During the period when my aunt was still alive but really ill, my parents went back and forth to visit her. On the day she passed away, they went immediately but I told my mum to leave my brother behind because he wouldn’t like the atmosphere there so she did. It was the first time in my life where I took on a temporary sole caring role and I was nervous. I was nervous because what if he realised my mum wasn’t at home and cried? Or what if he threw a tantrum and I couldn’t calm him down? I had all these worries in my head but I made sure that whatever happened during the time they were away, it was my job to make sure my brother was happy and content. Yes, my other siblings were at home too but they were getting on with the own stuff.

Surprisingly, my brother was sound. He didn’t cry, he didn’t throw a tantrum. I was able to feed his snacks without any difficulties. We played together for a bit, a few cuddles then he went off to escape into his own little world. Though, the biggest obstacle was yet to come. Dinner time.

I don’t know but on most occasions, dinner time seems to be a challenge. On some days yes, he’ll eat his dinner but on other days, my mum would struggle to feed him because he simply doesn’t want it. My brothers always been very picky with his food and it is difficult to feed him. Before my mum left, she did give me a list of alternatives in case he didn’t eat his dinner. Sucking it up, I went to prepare his dinner. Being asian, rice and curry is what we tend to have on most days for dinner. Even my brother. But we do incorporate protein and veggies just so it’s healthier than some curries which is filled with just oil and other not so healthy curry making necessities o-o

So I mashed up the rice because my brother doesn’t really like chewing a lot. I mean he chews but he doesn’t like it. Then I added chicken and some veggies and mashed the whole thing before heating it up and serving it to him. Then, the time came. And bam, he refused to have the first spoonful. My heart was crushed and my brain was in full panic mode. Just what exactly was I supposed to do now? I remembered my mum gave me a list of alternatives but frankly, that went out the window since I was panicking alot. Then something popped into my head. Sometimes when my mum feeds my brother, she usually gets his interactive book out and gives it to him and then he eats his dinner whilst playing it. So, I thought I’d do that.

I got the book out and gave it to him, and readied the first spoonful. But he still refused to have it. I don’t know what happened after since it was all a blur but I’m pretty sure that I was close to having a full on panic attack or something of that sort. But I remember just taking the book from him and going into the kitchen. Naturally, my brother started whimpering and followed me into the kitchen wanting his book back but I was firm and said ‘No,’. I put the book somewhere so he couldn’t reach it and refused to give it to him.

After like 5- 10 minutes or so, I took the book into my hands and went back to the living room, where he sat in his seat, looking at the book in my hands. The first thing I did was ready a spoonful, I looked at him and began to move the spoon closer to his mouth as well as the book, closer onto his lap. Once he took the first spoonful and the book was in his hands, a wave of relief overwhelmed me. SUCCESS! I FED MY BROTHER! I overcame the obstacle of him not eating and in a way, I think I taught him that if he didn’t eat his dinner, then he wasn’t going to get his book. I even managed to finish feeding him! Straight after, I remember feeling really happy and confident, overcoming the biggest obstacle of the day and found even more confidence when I got him to sleep right away on his bed.

Honestly, part of me thinks that I got lucky whilst the other part of me thinks that I can do it again. Frankly, I don’t know what to believe!

One of the newest developments had to be my brother attempting to say the word ‘No’. It’s not very clear but instead he says ‘NNAAAAAH!’. But we think it’s the same thing. For instance, when he’s at home and he refuses to eat he says ‘NAAAHHH’ with a serious expression on his face to match. Or when he gives us the channel changer to put it on a channel he wants to watch and we put it on the wrong one, he says it again but a bit more upset. Sometimes, he’d say it with anger. But it’s awesome to see him using a word, even though it’s not clear to let us know that that’s not how he wants things done!

Sadly as of right now, my brother is ill. He’s been ill with diarrhea for three days! He’s even been throwing up everyday during those three days in the morning and he refuses to eat anything. Poor baby Q~Q I hope he gets well soon!

Referring back to my last post, I said I wanted to expand this project and I had all these ideas, one of them being creating a Youtube page and posting up a video on what this project is about. Right now, it’s on hold since I have exams but I will get back to it. I’ve also been thinking of posting up videos of my brother and his crazy wild antics and thought that would be pretty cool (:

Anyway, I shall sign off here and hopefully, I’ll talk to you all soon!

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Liebster Blog Awards

A few days ago, my blog had been tagged by the very awesome aspertypical for the Liebster Blog Awards. Thank you so much! The Liebster award is given to up and coming bloggers who have less than  200 followers!

There are a few rules to this though and that is:

1. Give 11 random facts about me.

2. Answer 11 questions that the tagger gave me.

3. Make 11 questions so the people that I tag have to answer.

4. Tag 11 blogs that are new or have less than 200 followers (Not exactly a rule but I guess you can guesstimate?)

So, 11 random facts about me:

1. I love to read dystopian novels.

2. I write in my free time and post my stories on a website called Wattpad.

3. When I was 6, I used to play under a chair and pretend that was my house o-o (please don’t ask why)

4. On one occasion whilst playing in my ‘house’, my mum was calling me and I got up immediately making me hit my chin on the wooden bit on the chair. Ended up in hospital and a mark for life to remember the occasion by.

5. When I was 7, my cousin came around and we were at the top of the stairs. She wanted me to carry her down and I was scared of her back then so I carried her and after one step, we tumbled down.

6. I always used to draw all over my legs when I was younger.

7. Maths is my mortal enemy.

8. I adore Disney films.

9. Backstreet Boys and Westlife are my guilty pleasures.

10. I over think things.

11. Four is my favourite number.

Tagger’s Questions:

1. What is your most embarrassing moment?

I had an exam in college and I was walking with my friends and I suddenly tripped over, with everyone just staring at me. A few minutes before the exam, not so good. My face was burning with embarrassment!

2. What’s your favourite topic to blog about?

Well, I guess it’ll have to be the shennanigans my brother gets up to because at the end of the day, he is just a typical 5 year old, despite him having autism.

3. Do your friends, family or work colleagues know about your blog?

Only my family.

4. What are you currently reading?

Divergent by Veronica Roth.

5. What are your aspirations for your blog?

Well ideally, I want to create a sort of community so other people would be able to share their experiences and contribute 🙂

6. What was your first gig?

Gig? As in opportunity or gig as in concert? First concert? Haven’t been to one yet D:

7. What would your dream job be?

Speech and Language Therapist, Journalist/Writer, Author, Publishing?

8. Do you have a guilty pleasure?

YES! Backstreet Boys and Westlife! Oh and I should add NSYNC to the list.

9. What is your biggest regret in life?

Pretending to be someone I’m not.

10. What do you deem to be the biggest success in life?

I don’t know really because I’ve only lived 18 years so not sure! Maybe…

11. What is your favourite film?

The Avengers 🙂

New Questions:

1. What advice would your give to your younger self?

2. Other than your dream job, what would be your alternative?

3. What your favourite meal/food?

4. Any fears?

5. If the world were to end tomorrow, how would you spend your final moments?

6. Best school/college/uni memory?

7. Do you have a secret/freaky skill/trick? If so, what is it?

8. What’s your favourite drink?

9. Best childhood memory?

10. What’s the first thing that comes to your mind when I say “blogger”?

11. If you had the opportunity to produce and make a film based on a book, which book would it be and who would you cast as the main character?

11 Bloggers I’m tagging and why:

1. AutisticallyBeautiful

A mother of an a daughter with autism who shares her experiences and thoughts- ones which I find very interesting!

2. AutismAndOughtisms

A mother and her take on parenting and Autism. Very informative and thought provoking 🙂

3. thatawkwardkid93

A personal look on life from someone on the spectrum!

4. LifeAtMyHouse

This blog has a great sense of humor! And awesome stories 🙂

5. AspieWarrior

Outlooks on life from a 46 year old father with Aspergers.

6. AutisticAndAwesome

A really quirky and fantastically awesome blog!

7. storiesofayoungvolunteer

She’s great, and she’s awesome. And her blog is filled with voluntary wisdom!

8. sparklyandslimming

A very motivational weightloss blog from a very inspiring lady!

9. emmashopebook

Blog written by two parents about their day to day experiences with Autism- This blog constantly brings a smile to my face. Definitely a HOPE blog!

10. capturingautism

A mothers inspirational take on autism, definitely a blog to check out!

11. aspertyical

I know she tagged me but I just have to include her! I really really love her blog, and her perspective on things 🙂

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It’s been a month and two days.

Not being specific or anything or highlighting my lack of getting things done.

In all honesty, did not ditch the blog! I was really busy with college and UCAS so I guess college commitments come first before this. So I thought, it’s been too long since I’ve posted in this blog so I’m sure taking a bit of time off of my college commitments won’t hurt 🙂

Other than me being busy with college, we’ve noticed that my brothers been starting to babble a bit more and exploring a wide range of uh.. consonants- kind of. Either way, he’s been verbal and that’s what counts xD He went to have his check up for this year at the center that first diagnosed him. So, when I came back from college, my mum had some good news. They had said that everything from his brain to his toes were perfectly fine. That he had improved. His mental age in a way to put it is now three which is great because it shows that he improved! Also, my mum asked him where he was on the scale- something that no one ever told us.

So the lady explained to my mum that my brother is able to do a lot of things but it’s just that he’ll only do what he wants to do a.k.a stubborn. But I guess it’s not stubborness? He just doesn’t want to do it, but he can do it. Which I guess upon hearing it made my mums day because she’s always noted that he was stubborn for his age, and the fact that he is able to do things gave her hope because he can do it and now she understands that we’ll just have to keep at it so he’ll do it eventually, slowly but surely.

Oh and a few posts ago, probably one of the first few posts, I wrote about one of my brothers medicine which stank like sh-. Well, we finally found a way for him to have it 😀 So my brother likes to drink his mango juice so we decided to mix a little in there. (Its a syrup and we checked with the doctor and it’s perfectly fine!) AND HALLELUJAH HE DRINKS IT C: They’re going to send him to a blood test to check his vitamin levels and all that jazz.

So things are looking a lot more positive c: I’ve learned that he’s going to meet with the speech and language therapist every thursday and I guess I’m really eager about how things go that I keep harping the school to update us about it (I’M SORRY, I CAN’T HELP IT Q~Q) But yeah, he’s going to go through an assessment and then they’re going to do things around that. I’d love to be there when they do it! But I don’t think I’ll be able to D: I recently brought a book about SaLT and how they do their work, and I’m honestly looking for some free time to read it. I just find the job of a speech therapist really awesome and the fact that you get to use your creativity in it too, I mean I have a few ideas ^^ But I hope I can do it. If I put my mind to it, I can.

I think the key thing to anything is to perseveare but DON’T OVER DO IT! Because soon the enjoyment just gets sucked out. *nod head*

Well I’m going to end it here since I have coursework to do and hopefully, I’ll post another blog up soon. Oh, it’s my brothers birthday soon! November the 13th! I’m going to attempt to make a double decker cake 😀 not that he’ll have any but yeah! 😀

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The medicine that could kill you with its smell.

Basically the title- true story. (the stench of the medicine not the death o.o)

My baby brother has to have this vitamin medicine which literally all the vitamins in the world (exaggerating) in it. This is because of his diet being really restrictive. The dietician prescribed this and told us to feed him to medicine for as long as we can. So, being the loving and responsible family that we are, we do what we’re told. I remember opening the bottle, and the stench (smell) of it hit me. It was just naasttyyyy.

Whilst I was helping my mum to prepare, I was thinking ‘how on earth is he supposed to get this down?’. My fears came true when he refused to have it- I don’t blame him, just looking at it made me gag. And its really frustrating when we went back to dietician and she doesn’t seem to understand that it is I M P O S S I B L E for him to have medicine that smells like crap. He’s not going to have it. Even if you try and force it down. He usually has his medicines- he knows he has to take them. However with this one, it just smells really bad and he’s not budging.

So we’re in a bit of a smidge. The dietician said that we should feed him it and then quickly give water but IT WONT WORK.  I don’t know what makes it smell so bad. I’d say the name but if you have a memory like mine, its pretty useless.

I held the bottle out for my mum, and I just sniffed my hand and the stench… *dies*

 

 

1

Cutest thing ever.

My brother was sitting next to me- and he was playing with my hair. I don’t know what fascination he has with it but he loves my hair- he’d even lick it o.o (with the licking thing, the lady said that it was his way of identify things o.o)

Anyway, I had my hair in plaits and then the end hair band came off so my brother got off of the sofa and picked it up, then he gave it to me :’) it was the first time ever I’ve seen him do it and it was the cutest thing ever! I told my mum and she got really happy. Things like this show that he’s just improving everyday, and things like this do make my day. Also, he ate bread dunked in tea today ^^. He never ate bread before but my mum wanted to make him try, so she got him on to her lap and some how made him eat it. I think he found it tasty and so my mum put him back on his chair and ate the whole thing :’)

She tried feeding him cucumbers but he hates that stuff. In actual fact, he hates all solid-hard food. Just pondering on whether theres ways to get around this? Before, when any of us gave him a slice of apple or carrot, he would lick it and he’d know its meant for eating so he’d put it down. Now he won’t even go near the stuff o.o

Any ideas on how to go round this?

2

To eat or not to eat.

So my brother was having one of those days where he’ll refuse to eat his tea. He had just come back from the dietician and she said that he’s improved which is always great to hear! 🙂 But oh no, coinkidinkily (pardon my use of random words that aren’t from the english dictionary) he came back refusing to eat. My brother has this thing where he’ll eat but only if the channel is switched to 998 which for those who have Sky and live in the UK know that its one of the channels where Sky go on about their awesome whatsits. But yeah- that channel was on so he was refusing to eat. So mum got out his storio (http://3.bp.blogspot.com/_kUSTO85AS-c/TLrFTtvwfOI/AAAAAAAAB9Q/O-1cJJ1b-yM/s1600/storio.jpg) which he absolutely loves but he still refused to eat. In the end though, he had weetabix. I don’t know why he does that and I don’t think we’ll know anytime soon. I wish we did.

So he’s currently on his Storio, playing away but oh wait- the batterys dead and now he’s crying. He does this really cute thing where he’ll try and turn it on (despite the battery being dead but he doesnt really know this or maybe he does o.o) and if its not working, he’ll grab the finger of myself or anyone in the family and he’ll indicate that he wants them to turn it on. Its really cute c: Though it gets a bit much when he starts crying again and you have run round the house, trying to search for more batteries and when you do find them, it can be a bit difficult taking the toy off of him o.o

Oh so I have a question in my head. The dietician said that its not good that he drink from those plastic cups with the straw thing (http://ecx.images-amazon.com/images/I/41WcAxeeWfL._SL500_AA300_.jpg) because it’ll change the shape of his jaw or cheeks o.. o But isn’t that the same as drinking from the straw? It makes no sense o.o

Just remembered. We have this mat with numbers on and in the morning, I held my brothers hand and we went from one number to another and then I said its his turn. Not sure whether he understood that it was his turn but anyway, he managed to say ‘One’ C: like not with confidence I guess but more of a whisper? And he tries to say ‘Two’ he’ll say ‘T’, just the T but its massive improvement! I guess with lots of repetition, it does pay off. I mean if you keep saying it and show them the numbers- they’ll put two and two together (see what I did there? Pun wasn’t intended ^___^)

Still googling on the flapping thing. So far I’ve read that its their way of expressing themselves? o.o *googles some more*