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a pick me up.

My brother has this one habit where if we go for a walk- ten minutes into the walk he’ll given up and he’ll want to be carried. And if you refuse he’ll actually sit on the floor, no matter where we are. Once, me and my mum were on the way back from the doctors and he just stopped walking and lifted his arms out to my mum which usually means that he wants to picked up. So he’s just standing there and my mum is refusing to pick him up so, we what we do is we take a few steps forward to see whether he follows us but no! He decides to sit on the floor!

It’s quite hard to try and get him to walk for longer so I don’t know how we’re going to go around this. We’re thinking of getting him a bike and perhaps once he learns how to work it, he can cycle instead. Here’s hoping this works and if not then it’s back to square one!

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It’s been a month and two days.

Not being specific or anything or highlighting my lack of getting things done.

In all honesty, did not ditch the blog! I was really busy with college and UCAS so I guess college commitments come first before this. So I thought, it’s been too long since I’ve posted in this blog so I’m sure taking a bit of time off of my college commitments won’t hurt 🙂

Other than me being busy with college, we’ve noticed that my brothers been starting to babble a bit more and exploring a wide range of uh.. consonants- kind of. Either way, he’s been verbal and that’s what counts xD He went to have his check up for this year at the center that first diagnosed him. So, when I came back from college, my mum had some good news. They had said that everything from his brain to his toes were perfectly fine. That he had improved. His mental age in a way to put it is now three which is great because it shows that he improved! Also, my mum asked him where he was on the scale- something that no one ever told us.

So the lady explained to my mum that my brother is able to do a lot of things but it’s just that he’ll only do what he wants to do a.k.a stubborn. But I guess it’s not stubborness? He just doesn’t want to do it, but he can do it. Which I guess upon hearing it made my mums day because she’s always noted that he was stubborn for his age, and the fact that he is able to do things gave her hope because he can do it and now she understands that we’ll just have to keep at it so he’ll do it eventually, slowly but surely.

Oh and a few posts ago, probably one of the first few posts, I wrote about one of my brothers medicine which stank like sh-. Well, we finally found a way for him to have it 😀 So my brother likes to drink his mango juice so we decided to mix a little in there. (Its a syrup and we checked with the doctor and it’s perfectly fine!) AND HALLELUJAH HE DRINKS IT C: They’re going to send him to a blood test to check his vitamin levels and all that jazz.

So things are looking a lot more positive c: I’ve learned that he’s going to meet with the speech and language therapist every thursday and I guess I’m really eager about how things go that I keep harping the school to update us about it (I’M SORRY, I CAN’T HELP IT Q~Q) But yeah, he’s going to go through an assessment and then they’re going to do things around that. I’d love to be there when they do it! But I don’t think I’ll be able to D: I recently brought a book about SaLT and how they do their work, and I’m honestly looking for some free time to read it. I just find the job of a speech therapist really awesome and the fact that you get to use your creativity in it too, I mean I have a few ideas ^^ But I hope I can do it. If I put my mind to it, I can.

I think the key thing to anything is to perseveare but DON’T OVER DO IT! Because soon the enjoyment just gets sucked out. *nod head*

Well I’m going to end it here since I have coursework to do and hopefully, I’ll post another blog up soon. Oh, it’s my brothers birthday soon! November the 13th! I’m going to attempt to make a double decker cake 😀 not that he’ll have any but yeah! 😀

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Kids ask the most awkward things.

During the weekend, my family and I visited our cousins in Wales since we haven’t been there in AGES. Note that they are my first cousins (mums side of the family) and my cousins are all married so their kids are like.. my nieces and nephews I guess o.o But yeah, they’re aged between 5-10 and when it came to my brother, boy did they have a lot of questions to ask.

“Why doesn’t he talk?”

“Why isn’t he listening to me?”

“Can he hear me?”

I don’t get asked these questions by people my own age or older because they generally have an idea of what autism is. But when your young and all innocent, you just can’t help but ask the obvious question. Answering simply doesn’t always solve this case because they’ll always ask ‘why’ afterwards. And I have no idea how to respond to those questions that would make sense to them. I am in no way saying that I am ashamed to talk about my brothers autism, but I have no idea how to speak to younger kids about it. How would you explain Autism to young children?

I’ve contemplated many ways to say this such as:

“My brother can hear you, he doesn’t talk because he doesn’t know how to yet but he will later”

But then I think, what if ‘later’ I meet them again and they ask why he doesn’t talk yet. Is it then when I say that ‘He doesn’t like to talk?’ Or do I explain that he has Autism? I feel the need to nail these answers so I’m prepared the next time I get asked. Its hard because you want them to understand but at the end of the day, their just kids and maybe it’s best to just give the most plainest, and the most simple answer.

*sorry for not posting, been busy with A Levels! It will most likely get really hectic from here on but I will try my best to post when I can 🙂

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Shift into turbo! (Just a short update)

So I have a 4 soon to be 5 year old brother who may lack in speech but he can open the car door using the keys. Gifted? Yes I think so.

It was such a great day out yesterday! Mainly because of my brother. He somehow managed to put the car keys in the keyhole thing and with a little help, he turned the keys and unlocked all the car doors! And then he got in all by himself c: And his hat came off but he put it on- with no support^^ And once we were in the supermarket, he began to push the trolley! And then he got bored and kind of ran off and I ended up chasing him o.o

But by him just doing those things made my day! My smile became even bigger with the excitement of my parents just talking about it. It’s just those simple things that he does. Like it just makes you forget about the fact that he can’t speak yet and look way beyond that :’)

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Too many unnecessary words guys!

Children with Autism are known to have a very limited vocabulary.

This being said, when giving instructions or asking them to do something, ask them in the most simplest and most direct form. For example, don’t say ‘Hang it over there’. This will make the child with autism confused because to them, they don’t know what ‘it’ is, or what ‘there’ is either. They won’t understand the meaning of those words so instead, say ‘Hang your coat over by the door’. This would be so much easier for them to understand because they know that they have to put THEIR COAT by the DOOR. Children with Autism take things literally so the second example would make life so much easier for both child and parent/sibling/others. It’s simple, and directive.

But with my brother not being able to say actual words and just babbling when he does say something, even speaking in sentences seem useless. Sometimes, you think ‘Why even try?’, but the thing is, YOU HAVE TO TRY. Having a negative attitude will get you no where. You have to try, you have to be able to think and believe that if you keep trying, they’ll be able to understand. And soon, they’ll pick up on it. We were told by staff and others to say the word when performing an action. This is so that the child would be able to put the meaning behind the word. So when my brother comes up to me and puts his arms up because he wants me to pick him up high, I have to say ‘Up’. So the next time he hears the word, he’ll know what ‘Up’ is- maybe not straight away but perhaps in the near future. It’s situations like these were I feel as though using a word rather than sentences is better for him, so he’ll be able to understand a word rather than a jar filled with words he can’t relate to. (at this point, I don’t know if I’m making sense but if you understood it, 10 gold stars to you!- no sarcasm intended, I’m serious)

However, I sometimes think that maybe in some cases actions speak louder than words. For example, when I want my brother to come to me, I flick my hands towards me when I have his attention, and he does come to me and I hug him in return as a reward for him understanding. Though, times like these I don’t know what words to use. ‘Here’ is the one that comes to my mind but I still think that word would confuse him but I guess it wouldn’t hurt to try 🙂

I’ll end this post here. I’ll be honest, I can’t remember the point I was trying to make but I guess the point was, with and autistic sibling- don’t bombard them with truckloads of words they won’t be able to understand. Keep it simple.

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The epic battle of remote a.k.a channel changer.

As if it isn’t bad enough trying to watch T.V and having 4 other people who want to watch something else- my baby brother decided to join in as well!

If he were watching something, and then suddenly he starts playing with his toy piano and you decide to change the channel- he’ll become upset. I’ve come to learn that even though he’s not paying attention, he still likes to have the channel on to whatever he was watching previously. When he becomes upset, he’ll take the remote off of you and kind of shoves it at you for you to change it. It’s really C U T E!  >~< But can be a bit of a nightmare at times.

I remember once, he went the whole day without letting anyone watch anything and the other day- mum decided to change things up a bit so she changed the channel to something she usually watches and put the remote out of his reach. Of course he started crying… still continued to cry until I think, he got the message. SO the next time something similar happened and my mum put the remote out of his reach, he didn’t cry. He just did whatever really o-o

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Cutest thing ever.

My brother was sitting next to me- and he was playing with my hair. I don’t know what fascination he has with it but he loves my hair- he’d even lick it o.o (with the licking thing, the lady said that it was his way of identify things o.o)

Anyway, I had my hair in plaits and then the end hair band came off so my brother got off of the sofa and picked it up, then he gave it to me :’) it was the first time ever I’ve seen him do it and it was the cutest thing ever! I told my mum and she got really happy. Things like this show that he’s just improving everyday, and things like this do make my day. Also, he ate bread dunked in tea today ^^. He never ate bread before but my mum wanted to make him try, so she got him on to her lap and some how made him eat it. I think he found it tasty and so my mum put him back on his chair and ate the whole thing :’)

She tried feeding him cucumbers but he hates that stuff. In actual fact, he hates all solid-hard food. Just pondering on whether theres ways to get around this? Before, when any of us gave him a slice of apple or carrot, he would lick it and he’d know its meant for eating so he’d put it down. Now he won’t even go near the stuff o.o

Any ideas on how to go round this?